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About PCPC
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An overview of the Palliative Care Policy Center.
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Contact Us
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Send electronic mail to [email protected].
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The Sourcebook
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Online extracts from Improving Care at the End of Life, our guide to making quality improvement happen in institutional settings.
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Handbook for Mortals
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Online extracts from our authoritative consumer book on end of life care.
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End-of-life Care in Medicare
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· Why doesn't Medicare payment cover MediCaring Services now?
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File downloads
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Caregiver Guides: Caregiver manuals for Congestive Heart Failure (CHF) and Chronic Obstructive Pulmonary Disease (COPD).
· Download CHF Guide (PDF, 394 KB)
· Download COPD Guide (PDF, 377 KB)
· Read combined CHF/COPD Guide as HTML
White Paper: RAND Health White Paper WP-137 (2003) synthesizes a growing body of research on the
issue of chronic illness in the last phase of life. It describes the
demographic and cost components of the problem, examines gaps in the
current health care system, explores some reform measures that are
addressing urgent needs, and outlines a vision for adapting the
health care system to confront the new reality.
· Download PDF Format (PDF, 201 KB)
· Read as HTML
Congressional Update: June 2003. RAND Health's bimonthly update to Congress on RAND's work in health policy. This issue is a great "one pager" summary of key public policy issues in end-of-life care.
· PDF format (207 KB)
Medpac Report: Full text of final report on "Medicare Beneficiaries' Costs and Use of Care in the Last Year of Life". Shows how much Medicare has been paying for care in the last year of life, and what types of care were actually used.
· MS Word format (603 KB)
· PDF format (268 KB)
MediCaring Update: MediCaring Project Update, January 2000. Gives overview of the MediCaring Project with recommendations.
· MS Word format 938 KB
Senate Testimony: Full text of testimony by Joanne Lynn, MD, before the Senate Special Committee on Aging, July 17, 2000. Includes exhibits. Gives an overview of national trends in end-of-life care.
· MS Word format 362 KB
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Our site map gives a quick overview of all of the pages at our site. To find even more content on end-of-life care use the IICN Megasearch which will show results from many sources, not just from PCPC.
Sick To Death: Reforming Health Care For The Last Years Of Life
Joanne Lynn pulls no punches in her articulate and non-nonsense manifesto for reforming health care for the last years of life.
Just a few generations ago, serious illness, like hazardous weather, arrived with little warning, and people either lived through it or died. In this important, convincing, and long-overdue call for health care reform, Joanne Lynn demonstrates that our current health system, like our concepts of health and disease, developed at a time when life was mostly short, serious illnesses and disabilities were common at every age, and dying was quick. Today, health care and community services are not set up to meet the needs of the large number of people who face a prolonged period of progressive illness and disability before death. Lynn offers what she calls an "owner's manual for the health care system," with facts, strategies, and action plans for genuine reform.
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